Everything is so different each day. The doctor says his breathing tube needs to come out by Friday, he's already had it in for almost 3 weeks. He's not doing well today, he's been sleepy and unresponsive all day.
We have 3 options: 1) take the tube out, see how he does and if he can breathe on his own. He's got to be able to cough things out on his own, and he can't do that yet. If they had to re-intubate, they would most likely not have very good success.
2) take the tube out and if he goes downhill, do a DNR and we lose him.
3) do a tracheostomy, then take the tube out. This is the safest measure, but we would have to move him to a long term facility where they would continue to do physical therapy. Could take years.
He's ready to be moved out of ICU. They know he'll most likely live, but what will his quality of life be with each option? He will have severe disabilities. He can't speak now and may not be able to ever. The Dr. is discouraged that his right side is not responding.
We also need to talk about leaving the feeding tube in. If we take it out, he will have to learn how to swallow on his own.
The clot was big enough, it has damaged the other side of his brain. We know he's in there, we know it, but what to do at this point and what would he want? We need lots of prayers at this time.
Susie
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I am just so sorry, I read your blog to my parents and brother's are were all just broken with what your all going through- it's SO hard to have to be the one to make the choice for someone you Love, our hearts go out to your Family at this most difficult time, It's frustrating and such a hard situation- may you find comfort and peace with your decision. Were all rallying around your Family and your wonderful Dad at this time.Please know if you guys need anything we are here. Our prayers are with you all.
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